In a couple of weeks, I’ll be getting up on a Saturday morning to participate in the Lupus Walk. I participated last year as well, but I didn’t do any fund raising, which kind of defeats the purpose.
My brother in law has lupus as does one of my coworkers, and it’s a really, really crappy disease to have. I also have a neighbor who’s confined to a wheelchair due to lupus, so I worry about the future that other people with lupus face.
My coworker with lupus tells me that she supports the Alliance for Lupus Research because they spend almost all of their money on research. All donations by Lupus Walk sponsors will be dedicated to funding research.
The autoimmune disorders get a lot less attention than the other big name diseases (cancer, HIV, etc), but there are an awful lot of people who have them and they seem to be underfunded in terms of medical research. Most autoimmune disorders have no cure, and the main treatment is “take prednisone.” So any progress made in finding the cause of lupus or in treating it would be huge. The ALR has an FAQ with a lot more information about lupus.
Anyway, if you’d be willing to donate, I have a donor page set up. Thanks in advance for helping out.